My Just Giving Page

Here is my Just Giving page, any donations no matter how big or small is greatly appreciated :)

http://www.justgiving.com/meet730

About motor neurone disease (MND)

* Motor neurone disease (MND) is a fatal, neurological disease for which there is no effective treatment and no cure.

* MND kills five people in the UK every day.

* Today there are 5,000 people living with MND in the UK.

* Life expectancy from diagnosis is two to five years, and around half of those die within 14 months.

* It can affect any adult at any age.

* There is no cure and we do not know the cause of MND in 95% of cases.

* Imagine being trapped inside a body that can’t move. That’s the devastating reality of MND.

* MND attacks the nerves that control movement; people with MND can still think and feel, but their muscles refuse to work. As these nerves die the muscles weaken and waste, leaving people locked in a failing body, unable to move, walk or talk.

* MND is a complex disease and the symptoms of MND are unique to each person.

* Its often rapid progression and wide range of symptoms requires a proactive and multi-disciplinary approach to care. People with MND may require up to 18 different health specialists to help manage their condition.


About the Motor Neurone Disease (MND) Association

* The MND Association is the only national charity in England, Wales and Northern Ireland dedicated to people affected by MND.

* The MND Association funds and promotes research to bring about an end to MND. Until then we will strive to enable everyone with MND to receive the best care, achieve the highest quality of life possible and die with dignity. We will also do all that we can to support the families and carers of people with MND.

* The MND Association is a leader in the funding of cutting-edge MND research both within the UK and across the world. We only fund research of the highest scientific excellence and greatest relevance to MND and help to kick-start exciting new areas of scientific investigation into MND.

* Our leading reputation means that for every £1 we commit to collaborative MND research, we attract another £2 to £3 from other major funding bodies.
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* We currently fund ground-breaking projects in a number of various world-class research institutes in Edinburgh, London, Oxford, Sheffield and New York, among others. This flexible approach allows us to fund the best and most promising research regardless of the geographical location.

* The MND Association was founded in 1979 by a group of volunteers determined to provide support for people affected by MND and fund research into effective treatments.

Bullet Point Facts

Motor Neurone Disease:
* Leaves people unable to walk, talk or feed themselves
* Kills 5 people every day
* Is fatal with no known cure and kills around half of those diagnosed within 14 months
The MND Association:
* Ensures that people affected by MND can secure the care and support they need
* Funds vital research into causes, treatments and a cure for MND
* Relies mainly on voluntary donations

This affected someone in our family who we ultimately lost to this illness. Tommorrow will be the 2nd year anniversary of his death. He was loved by everyone who ever met him, and was taken much too soon from us. RIP Kerry Seadon, hope you are watching from somewhere laughing at the task i've set myself

Numbers mean something

It was only after visiting Pat that I realised that some people may want to choose their numbers. When I told Pat he was 005, he sighed and asked if he could be 007 instead. I wasn't in any position to back out of this meet. Pat was helping me out of a huge hole. I needed to get my numbers up, and leaving without a picture so he could be 007 wasn't an option. We did the picture, but it was only on the journey home that I started to think about 007, and why it was so special. James Bond of course. Now I'm not a James Bond fan in the slightest, in fact I'm very anti Bond, but my oldest and dearest friend, Mark Ecclestone was a huge Bond fan, so much so that he had me stalking sellers on ebay who were selling james bond blu ray boxsets (say that after a beer). He was perfect to be 007, the role was fit for him, and his wife would make a perfect 006, so I send a text in hope.......

005 - Patrick Wade

It had a become a little slow for my liking, so on Saturday 001 made an impromptu call to Lisa Wade (a mutual friend) to see if she was in to have her photo done. She wasn't....which really was the last straw, I had been going 6 days and only had 4 friends. It wasn't good enough, at this rate I would only get 243.3 friends, and that was well short. I needed to up my game but how could I do this. Lisa wasn't in, another spike in my wheel, but then after the harsh words 'I'm not in,' she finished the sentence with 4 magical words 'but my husband is'. Brilliant, Pat, Lisa's husband was in, and he was also a friend of mine, so off we popped to get 005

004 - Ian Baddeley

Its catch up time for the blog.
I haven't just been sitting around waiting for people to come to me. No. I've been busy e-mailing people through facebook, and a lot of people have been busy not replying......
This hasn't done my confidence any good when it comes to competing this task. This task is mamouth. The meet up with 14 people a week is hard in itself, but when I will be meeting up with people who I haven't seen since I left school, or even meeting up with people I have never met (ok, I may have a few Daniel Shaw's as friends who I don't really know.)
004, found me having to travel for the first time, only 30ft, but travel is travel.
I went to see my very good neighbours Ian and Angela. Unfortunetly, Angela isn't on Facebook so I just had to settle for Ian and a lovely glass of wine :)

003 - Bethany Simpson

My third 'Facebook Friend' is Bethany Simpson. I'm sure she is sending me subliminal messages

None Facebook Friend

I'm not sure you will believe this but 002's husband doesn't have facebook. Yes, you heard it right. What is the point of coming round when he hasn't got a facebook profile? I ask myself. Well, he did do the t-shirts. Comes the answer. I've still exposed him as a facebook 'loser', If anyone sees this man walking around Stoke-on-Trent shout 'get on facebook' to him, in your meanest voice