Monday, 9 September 2013
About motor neurone disease (MND)
* Motor neurone disease (MND) is a fatal, neurological disease for which there is no effective treatment and no cure.
* MND kills five people in the UK every day.
* Today there are 5,000 people living with MND in the UK.
* Life expectancy from diagnosis is two to five years, and around half of those die within 14 months.
* It can affect any adult at any age.
* There is no cure and we do not know the cause of MND in 95% of cases.
* Imagine being trapped inside a body that can’t move. That’s the devastating reality of MND.
* MND attacks the nerves that control movement; people with MND can still think and feel, but their muscles refuse to work. As these nerves die the muscles weaken and waste, leaving people locked in a failing body, unable to move, walk or talk.
* MND is a complex disease and the symptoms of MND are unique to each person.
* Its often rapid progression and wide range of symptoms requires a proactive and multi-disciplinary approach to care. People with MND may require up to 18 different health specialists to help manage their condition.
About the Motor Neurone Disease (MND) Association
* The MND Association is the only national charity in England, Wales and Northern Ireland dedicated to people affected by MND.
* The MND Association funds and promotes research to bring about an end to MND. Until then we will strive to enable everyone with MND to receive the best care, achieve the highest quality of life possible and die with dignity. We will also do all that we can to support the families and carers of people with MND.
* The MND Association is a leader in the funding of cutting-edge MND research both within the UK and across the world. We only fund research of the highest scientific excellence and greatest relevance to MND and help to kick-start exciting new areas of scientific investigation into MND.
* Our leading reputation means that for every £1 we commit to collaborative MND research, we attract another £2 to £3 from other major funding bodies.
* We currently fund ground-breaking projects in a number of various world-class research institutes in Edinburgh, London, Oxford, Sheffield and New York, among others. This flexible approach allows us to fund the best and most promising research regardless of the geographical location.
* The MND Association was founded in 1979 by a group of volunteers determined to provide support for people affected by MND and fund research into effective treatments.
Bullet Point Facts
Motor Neurone Disease:
* Leaves people unable to walk, talk or feed themselves
* Kills 5 people every day
* Is fatal with no known cure and kills around half of those diagnosed within 14 months
The MND Association:
* Ensures that people affected by MND can secure the care and support they need
* Funds vital research into causes, treatments and a cure for MND
* Relies mainly on voluntary donations
This affected someone in our family who we ultimately lost to this illness. Tommorrow will be the 2nd year anniversary of his death. He was loved by everyone who ever met him, and was taken much too soon from us. RIP Kerry Seadon, hope you are watching from somewhere laughing at the task i've set myself